Motor Neurone Disease Nurse Specialist

The Nurse Specialist with other members of the multi-disciplinary team (MDT) aims to

provide a specialist nursing service to patients with MND and their families/carers. They

will act as the key worker, supporting patients from diagnosis to end of life. In addition

the post holder will liaise with members of the broader MDT, including the Neurology

Department at UHL, and other agencies such as Social Services and Community Health

Teams and will provide support to other Healthcare professionals as required.

Undertake home visits and complete holistic specialist needs assessments.

Provide specialist intervention to support patients and carers.

Act as a resource for the primary health care team, other specialist teams statutory

organisations and voluntary organisations on issues relating to the care of patients

with MND.

Provide a telephone advice service to patients, carers and professionals.

In collaboration with the multi-professional team, plan the provision of care based

on a holistic needs assessment.

Manage nurse led MDT meetings and undertake nurse led MND clinics.

Liaise with other staff and departments at the Hospice, and refer to other

agencies that can provide additional forms of support for example, MNDA.

In conjunction with other members of the Multi-disciplinary Team (MDT), monitor

the progress of all MND patients.

Provide information to patients and carers to enable them to make informed

choices regarding care.

Comply with the NMC code of practice and adhere to all policies and procedures

of the Leicestershire & Rutland Hospice.

Comply with Health and Social Care Act 2008/Care Quality Commission.

According to LOROS Hospice Policy and where the Nurse Specialist has undergone

training, prescribe medication for patients.

Participate in any relevant training programmes for any professionals or non

professionals both within Leicester, Leicestershire & Rutland and nationally and as

required.

Participate in in-service education programmes and be responsive to external

influences and new initiatives.

Participate in education programmes for professional visitors on placement.

To participate in the provision for information.

Attends mandatory training and is responsible for developing own personal

development plan.

Provide co-support to team colleagues.

Participate in clinical supervision and reflective practice sessions.

Participate in any multi-professional audit, which evaluates the effectiveness of the

care, provided by LOROS Nurse Specialist Team.

Participate in and initiate multi-professional audit.

Be aware of new developments in the care of patients with MND and implement

appropriate research based practice.

Keep up to date with current advances in nursing practice and research and to take

responsibility for his/her own professional development (PREP) and maintaining

registration.

Participate in the development of standards for the MND Nurse Specialists and for

the wider CNS team.

Be an active member of the LOROS Community Nurse Specialist Team, contributing

to team initiatives and developments.

Contribute towards development of strategies for MND services within Leicester,

Leicestershire & Rutland.

Participate in appropriate Multi-professional meetings.

Demonstrate effective day to day planning through efficient management of self,

caseload and resources.

Maintain accurate standardised electronic patient records for activity, evaluation,

research and audit purposes.

Maintain confidentiality and conform to the Data Protection Act.

Comply with requirements of the Health and safety at Work Act and comply with

risk assessments monitoring and maintaining health, safety and security of self

and others.

All staff are subject to Equal Opportunities Legislation, the Data Protection Act and LOROS

Confidentiality Policy.

To carry out and comply with the prevention and control of infection as per LOROS policies

and procedures.

All staff are subject to LOROS policies, procedures and conditions of service, with

reference to the Health and Safety at Work Act 1974.

Take reasonable care for the health and safety of themselves and of other persons who

may be affected by their acts or omissions at work.

Co-operate with their employer as far as is necessary to meet the requirements of the

legislation.

All staff should be aware of and aim to contribute to LOROS Vision and Mission and also

strive to exhibit the Values & Behaviours at all times.

The contents of this job description are not exhaustive and may be amended

in accordance with the needs of the service after discussion with the post

holder whose agreement will not be unreasonably withheld.

is a local charity and every year we care for over 2,500 people across

Leicester, Leicestershire and Rutland. We deliver free, high-quality,

compassionate care and support to terminally ill patients, their family and

carers.

Skills and Attributes

Desirable: - Advanced communication skills; - Advance care planning training; - Experience of using electronic; - patient records

Knowledge

Desirable: - Knowledge of how working in; - the community effects patients; - care

Motivation and personal attributes

Desirable: - Initiated and lead on; - projects and ideas and carry them; - through

Qualifications

Essential: - Registered nurse Adult; - Evidence of study at degree level; - Willing to undertake training specific to the role

Desirable: - Relevant Degree; - Teaching qualification; - Non-medical prescribing qualification

Experience

Essential: - Significant post; - registration proven experience; - at band five or above in relevant setting.

Desirable: - Community experience; - Experience of caring for people with a neurological disease; - Palliative care experience; - Teaching experience