MND Care Coordinator

You will be based on site at our Coventry Hospice, but with regular travel across the region, including home visits.

It is a full-time role at 37.5 hours, over 5 days, per week. Job share will also be considered.

Benefits of working at Myton

Myton is an amazing place to work, where the role every person plays has a positive impact for our patients, living with terminal illnesses, & their families. In recognition of this, we offer a wide range of benefits:

Key areas of responsibility

provide a single point of access from diagnosis for patient, their families and

health and social care professionals.

relationship with patients and their families helping to enable them to make

informed decisions about treatment/care and advance care planning.

to patients and carers to enable them to make informed choices regarding care.

clinics and the Multidisciplinary teams which promotes a proactive,

timely, and holistic approach to the care and management of people living with

MND and their families.

and awareness amongst health and social care professionals and care staff in

the Hospices, hospital, community and relevant care homes of the impact of a

diagnosis of MND on the patients, families and carers.

of the multi-disciplinary team (MDT) meetings pre and post the combined clinic

and then to disseminate care plans to community allied health care professionals.

between the specialist practitioners within the hospital, the Community Health

and Social Care teams, hospices services and tertiary centres.

appropriate coordination of onward referrals.

and communication with MND Association regional staff and with a view to

promoting the MND Association and the services it provides for people affected

by MND.

appropriate local MND Association Support Group meetings

level of communication with individuals in order to meet the differing levels

of understanding. Including those with cognitive impairment and those with

additional communication needs.

patient records (EPR) where appropriate

referrals as the single point of access and liaise closely and align with

already established MND Co-ordination in the North of the County.

referrals to the MND Association as appropriate.

of audit and service evaluation in collaboration with the MND Association.

bereavement process including follow up support and notifying other agencies

involved in the patients care about their death.

holistic needs assessments and complete management plans across the disease

trajectory from diagnosis to end of life.

key workers within the community to prevent delays in supportive treatment and

to avoid hospital admissions.

the relevant care setting, those newly diagnosed with MND.

with regional partners such as Birmingham MND Care Centre, University Hospital

of Coventry and Warwickshire, Mary Ann Evans Hospice, The Shakespeare Hospice,

to ensure timely, high quality, equitable care for all people with MND in the

Coventry and Warwickshire ICB footprint.

identification and review of inpatients and co-ordinate with community teams to

reduce length of stay.

knowledge to work with people with MND, and their families in outpatient

clinics, in-patient settings, their own homes and other settings to manage

symptoms and provide support.

use of advanced communication skills where appropriate to support patients and

families through life changing events.

referrals to Consultants, Physiotherapists, Nutritional, Respiratory and other

Specialist services where required.

understanding and awareness of the range of MDT professionals care input that

will promote quality of life for people with MND, for example orthotics, OT

equipment, warning signs of dysphagia, voice banking, weight loss and

nutrition.

care following the diagnosis of MND.

service across the whole of Coventry and Warwickshire as and when required

acting as a point of reference and specialist advice for patients, families and

health and social care professionals.

area: identifying gaps in service, areas of good practice and ways to address

service improvement.

multi and interdisciplinary agencies and persons involved.

professional registration at all times.

excellent standards of documentation and be able to provide information

regarding the present needs of people with MND.

evidenced continued professional development.

Association Care Centre and Network Day, Regional Special interest groups and

become an active member of the Associations Community of Practice.

role model and provide clinical leadership.

highest professional standards and support the development of clinical

expertise.

development of practice within post holders specific area of professional practice.

lead Multidisciplinary teams in order to provide a systematic and holistic

approach to care and management of people with MND.

local leadership and support of staff, planning and directing activities to

provide optimal standards of care.

to feel confident and competent in delivering care to people with MND.

develop local pathways to recognise unmet need.

facilitate and implement changes in clinical practice to meet policy or service

development for specialist area, which may impact on other disciplines.

excellent communication and organisational skills in balancing the demands of

this unpredictable and complex condition.

issues and facilitate decision-making relating to patient care, safety,

treatment options and outcomes, and supervise others in doing this.

accommodate barriers to communication and understanding including speech,

hearing, language and emotion.

(visual and auditory) to interpret the spoken word and understand patient

dialogue, i.e. being empathic, patient and able to concentrate on the spoken

word when patients struggle to form words and sentences.

verbal and non-verbal communication skills to impart sensitive, complex and

potentially distressing information to patients and carers regarding disease

progression.

highly complex, sensitive information with people with MND and carers on MND to

ensure their active involvement in the medical care planning, treatment

delivery and informed consent process.

with MND, families and carers to develop understanding of MND promoting

self-management.

ways that empower patients to make informed choices about their health and

care.

specialist advice to a range of health care professionals within the scope of

specialist practice.

members of the multidisciplinary team to achieve optimum levels of care in

relation to specialised area of practice.

networks with peers to share good practice.

complex and sensitive information within a variety of both formal and informal

settings.

maintain links with local professionals and voluntary services and develop

expert knowledge of other local resources that can provide help and support

with e.g. benefits and bereavement services.

maintain an up-to-date database of local resources that can meet the needs of

people with MND and their families.

to review and streamline pathways for accessing appropriate care and

interventions e.g. gastrostomy insertion, ensuring equity for patients across

the region.

implement pathways to ensure that all people with MND have timely access to

genetic testing and access to disease modifying medication such as Tofersen if

appropriate.

education for patients/family and carers, and health care professionals

(internally/externally) for complex case management, neuro-respiratory

conditions and interventions.

Collates and records quantitative and qualitative data to provide evidence of

productivity, outcomes and quality, through audit and research

the MND Association regarding grant, priorities, auditing.

with the MND Association on initiatives to develop and improve services to

support people with MND, their families and carers.

in response to emerging knowledge and techniques.

manages change within a complex environment and advising other clinicians,

social care professionals, and voluntary agencies on the development of

services for people with MND.

and evaluate policies relevant to own area of work and within the parameters of

the MND Association objectives.

links with the MND Association to ensure access for patients and families to

the local support offered through volunteers, branches and support groups.

and develop knowledge and skills in others though formal and informal education.

clinical role model to other clinical staff in supporting the development of

others, sharing advanced level knowledge and skills.

and delivery of high-quality education and training events including but not

limited to topics like End-of-Life Care (EOLC), respiratory care for both

internal and external provision.

and supervision for other staff members on the use of specialised equipment and

develop supporting documentation for this.

on submitting articles for publication to share improvement work.

At The Myton Hospices, we provide specialist care and support for people with life-limiting illnesses, and their loved ones, from the point of diagnosis to end of life. We are a much-loved and well supported charity, at the heart of our community. We have three hospices, a range of community services, and 25 charity shops in Coventry and Warwickshire.

We are committed to building an inclusive workplace and encourage everyone to bring their true selves to work. However you identify, and whatever background you bring with you, we welcome you to apply. If there are any adjustments that would help improve your experience with Myton, we encourage you to share this with us.

We particularly welcome applications from people with disabilities and from ethnic minorities, who are currently under-represented in our hospices. We also believe our interview process should be inclusive and transparent. If there is anything missing, or a way we can improve, please do let us know.

If you would prefer a paper application form, or if you have any questions including about support or adjustments, please contact HR on 01926 838 849, recruitment@mytonhospice.org or by post: HR, Warwick Myton Hospice, Myton Lane, Warwick, CV34 6PX.

We now share interview questions with all candidates in advance, to help reduce nerves and enable you to truly show your best abilities. You are also welcome to bring any notes with you to your interview, if you would find this helpful.

Other

Skills and Attributes

Experience

Desirable: - Experience of service development and improvement

Qualifications

Essential: - Valid Registration with a professional body (e.g., NMC for Registered Nurses, HCPC for Allied Health professionals; - First Degree or equivalent